About
With a background in nursing, I work as a Lecturer in Complex and End of Life Care. I am active in research in this field and focus my time and energies on exposing and tackling inequalities in access to end of life care, experiences of care quality, and the appropriateness of care through reasonable adjustments. I work with passion to expose and reduce inequalities in end of life and palliative care by increasing the visibility, and promoting the needs of people who are marginalised, overlooked or disadvantaged.
You can update this in Pure (opens in a new tab). Select ‘Edit profile’. Under the heading and then ‘Curriculum and research description’, select ‘Add profile information’. In the dropdown menu, select - ‘About’.
Write about yourself in the third person. Aim for 100 to 150 words covering the main points about who you are and what you currently do. Clear, simple language is best. You can include specialist or technical terms.
You’ll be able to add details about your research, publications, career and academic history to other sections of your staff profile.
Research
Research interests
- Measurement of quality and experiences of palliative and end of life care.
- Identifying and exploring sources of inequality and inequity in access to quality end of life care
- End of life care for people with intellectual disability and anticipating end of life
- Exploring the impact of unexpected death on bereavement
Current research
Development and testing of VOICES-Children, a questionnaire of the quality and experiences of end of life care for children, completed by bereaved parents.
A national survey of end of life care for people with intellectual disabilities during the COVID-19 pandemic
A scoping review of palliative and end of life care for people with End Stage Liver Disease who are actively drinking alcohol.
You can update the information for this section in Pure (opens in a new tab).
Research groups
Any research groups you belong to will automatically appear on your profile. Speak to your line manager if these are incorrect. Please do not raise a ticket in Ask HR.
Research interests
Add up to 5 research interests. The first 3 will appear in your staff profile next to your name. The full list will appear on your research page. Keep these brief and focus on the keywords people may use when searching for your work. Use a different line for each one.
In Pure (opens in a new tab), select ‘Edit profile’. Under the heading 'Curriculum and research description', select 'Add profile information'. In the dropdown menu, select 'Research interests: use separate lines'.
Current research
Update this in Pure (opens in a new tab). Select ‘Edit profile’ and then ‘Curriculum and research description - Current research’.
Describe your current research in 100 to 200 words. Write in the third person. Include broad key terms to help people discover your work, for example, “sustainability” or “fashion textiles”.
Research projects
Research Council funded projects will automatically appear here. The active project name is taken from the finance system.
Publications
Public outputs that list you as an author will appear here, once they’re validated by the ePrints Team. If you’re missing any outputs that you’ve added to Pure, they may be waiting for validation.
Supervision
Current PhD Students
Contact your Faculty Operating Service team to update PhD students you supervise and any you’ve previously supervised. Making this information available will help potential PhD applicants to find you.
Teaching
For the last ten years I have been actively involved in teaching health professionals about palliative and end of life care, clinical leadership, and research and enquiry in their clinical areas. I very much enjoy supporting health professionals to translate their clinical skills into research skills and find answers to their clinical questions through research.
I am also engaged in teaching pre-registration nurses about palliative and end of life care, as well as research methods and systamatic reviewing.
I am the module lead for e-Research Methods, a masters module that provides students with a practical foundation in research and prepares them to undertake research projects or a dissertation.
You can update your teaching description in Pure (opens in a new tab). Select ‘Edit profile’. Under the heading and then ‘Curriculum and research description’ , select ‘Add profile information’. In the dropdown menu, select – ‘Teaching Interests’. Describe your teaching interests and your current responsibilities. Aim for 200 words maximum.
Courses and modules
Contact the Curriculum and Quality Assurance (CQA) team for your faculty to update this section.
External roles and responsibilities
These are the public-facing activities you’d like people to know about.
This section will only display on your public profile if you’ve added content.
You can update your external roles and responsibilities in Pure (opens in a new tab). Select ‘+ Add content’ and then ‘Activity’, your ‘Personal’ tab and then ‘Activities’. Choose which activities you want to show on your public profile.
You can hide activities from your public profile. Set the visibility as 'Backend' to only show this information within Pure, or 'Confidential' to make it visible only to you.
Biography
I have a particular interest in access to care and the quality of end of life care, taking a public health perspective to research on the end of life and bereavement. Being involved in the development of the VOICES-SF questionnaire and first national survey of end of life care, fuelled this interest and has led me to develop VOICES questionnaires for other, often overlooked groups. For instance, a version for people with intellectual disabilities formed the focus of the first nationally representative survey of end of life care for people with intellectual disabilities. Working with Prof Anne-Sophie Darlington and my PhD student Rawnaq Almahadeen, I am now developing a paediatric version of VOICES, VOICES-Children.
I am fascinated by disease and end of life trajectories for people with conditions other than cancer. This has brought me to research disease and care experiences for people with COPD, heart failure, kidney disease and liver disease as well as anticipation of end of life and end of life trajectories for people with intellectual disabilities.
I have an interest in theory and its role in health research. I recently developed Cognitive Authority Theory which aims to explain how people gain and express authority over their health, and maintain control over the factors that challenge their ability to do so. The theory is particularly helpful in exploring and explaining dynamics and power relations between patients and health professionals and the allocation of responsibility. My work in Burden of Treatment Theory has a complementary fit with Cognitive Authority Theory.
I have expertise in both quantitative and qualitative research designs and approaches, systematic reviewing, outcome measurement, survey and questionnaire design.
You can update your biography section in Pure (opens in a new tab). Select your ‘Personal’ tab then ‘Edit profile’. Under the heading, and ‘Curriculum and research description’, select ‘Add profile information’. In the dropdown menu, select - ‘Biography’. Aim for no more than 400 words.
This section will only appear if you enter the information into Pure (opens in a new tab).
Prizes
You can update this section in Pure (opens in a new tab). Select ‘+Add content’ and then ‘Prize’. using the ‘Prizes’ section.
You can choose to hide prizes from your public profile. Set the visibility as ‘Backend’ to only show this information within Pure, or ‘Confidential’ to make it visible only to you.